Thank you Patti. Well done. Here is a link to a slide show of the photos that I took during the weekend. Move your cursor over the photos for options (icon lower right enlarges photos to
full screen, right click for options such as print)

http://w

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PMD Clinical Trial

We have some exciting news to share with you that we know most of you will be hearing for the first time. Right around Thanksgiving, researchers at University of California San Francisco Children's Hospital started accepting applications for a Phase 1 stem cell trial for PMD. We sent Jack's medical records to them and we got… Continue

INDY STAR.COM

Mayor's awards honor 19 volunteers
By Kevin O'Neal
Posted: November 5, 2009

Community volunteers were honored Wednesday in the annual Community Service Awards, given to those who have shown exceptional effort in volunteer work.

Mayor Greg Ballard handed out the 19 awards in a ceremony at the Indiana Historical Society. Bricks bearing the recipients' names will be placed at the Mayor's Volunteer Plaza on the Downtown Canal at the Adm. Raymond Spruance Memorial Basin.........

Pat… Continue

The Central Park Challenge was a huge success! Jack's Team raised $9,295 for YAI/NIPD (Young Adult Institute/National Institute for People with Disabilities.) The organization began over 50 years ago with the purpose of providing activities and socialization for young adults with di… Continue

Lack of nerve coating can be life-threatening
Genetic disease, often mistaken for cerebral palsy, ranges from mild to severe and has no cure
By CHRISTINE FACCIOLO • Special to The News Journal • May 26, 2009

Link to the article:
http://www.delawareonline.com/apps/pbcs.dll/article?AID=/200905260345/HEALTH/905260313

Jack Leonard's birth was meant to be a joyous occasion. Jeff and Linda Leonard of Robbinsville, N.J., were looking forward to introducing their daughter to her brother,… Continue