PMD FROM GREECE
HELLO I AM A MOTHER FROM GREECE. I HAVE ALSO A DAUGHTER 2 YEARS OLD WITH PMD.I WAS WONDERING WHAT ARE THE SYMPTOMS OF YOUR DAUGHTER AND HOW IS HER SITUATION AT THE TIME PRESENT
Open Community for Pelizaeus Merzbacher Disease
This is an open web community for families, medical professionals, therapists, and scientists interested in Pelizaeus-Merzbacher Disease
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Gretchen Mol
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Lee & Maite Robinson commented on Marguerite Hardy's blog post 'question'
Hi, Marguerite and welcome to the group! Our daughter has PMLD, the disease that mimicks PMD and I will be happy to share details with you. I don't come to this site too often, so it would be easier if you could e-mail me directly at…
I have a two years old daughter.I search for families with females members , who have PMD because I know It is very rare
Status posted by Maira Fotiadou
There are treatment in China by stem cells with Dr. Hakim that improvement percentage up to 70% ,I need your cooments to intend this treat?
Status posted by A.Rahim Al-Abbasi
melisa schultz left a comment for Amanda
hi i live in indiana too north vernon
Forum
Botox injections
Started by Eddie Armenta Jan 22, 2011.
Null syndrome
Started by susan suter Nov 30, 2010.
Searching for PMD families in the Atlanta, GA area
Started by Keith Mains May 21, 2010.
Blog Posts
PMD FROM GREECE
HELLO I AM A MOTHER FROM GREECE. I HAVE ALSO A DAUGHTER 2 YEARS OLD WITH PMD.I WAS WONDERING WHAT ARE THE SYMPTOMS OF YOUR DAUGHTER AND HOW IS HER SITUATION AT THE TIME PRESENT
Posted by Maira Fotiadou on October 17, 2011 at 6:32am
Welcome, Marguerite!
Welcome to the PMD Community. Our daughter Ana is 4 and she was diagnosed with PMLD (Pelizaeus-Merzbacher-Like Disease) a couple of years ago. Feel free to contact us (maite.robinson@gmail.com or 281-655-8128) if we can be of any help.
Posted by Lee & Maite Robinson on October 7, 2010 at 3:41pm
question
Our family is new to PMD. My daughter, Olivia, is 13 and just diagnosed. I was wondering if any of the families have
similiar stories as ours. Her symptoms seem mild compared to the stories I read about although she has findings on her MRI showing much involvement in the white matter of her brain. Any response would be appreciated.
Posted by Marguerite Hardy on September 2, 2010 at 3:56pm — 1 Comment
Photo Slide Show of the 2010 Riley PMD Conference
Thank you Patti. Well done. Here is a link to a slide show of the photos that I took during the weekend. Move your cursor over the photos for options (icon lower right enlarges photos to
full screen, right click for options such as print)…
Continue Posted by Don Hobson on June 15, 2010 at 1:13am — 2 Comments
Phase I Clinical Trial, Stem Cell Transplant, PMD
PMD Clinical Trial
Posted by Don Hobson on December 15, 2009 at 12:37am — 5 Comments
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